I've actually almost got Maeva's 40th birthday present ready to post. I'm just not sure how I'm going to ship it all. Sparky is determined to go as well!
We took Luke quad biking. Luke doesn't like motorbikes at all but it was Mike's idea. We had a 2.5 hr drive to get there. Luke went 50 yards, fell off and refused to get on again. So that was a bit of a unfortunate event. But we went to the beach (I use the term 'beach' very loosely - Eastbourne is mainly pebbles, not sand) and had fish and chips on the Victorian pier.
We also took Luke to the fossil beach near Lyme Regis. The boys had a great time. I mooched around near the car as I couldn't keep up with them but it was nice to be out. I was almost in tears on the way back as I'd well overdone it and was in such pain and felt like I had bad flu. thank goodness Mike is so kind and understanding.
Luke's vegetables are growing OK, except for his pumpkins which are rotting as its rained so much. We did find this massive slug though. I've never seen anything like it!
This chronic fatigue is kicking my butt. I have about 2 days of feeling about 60% ok and then have about 5 days of being totally exhausted and in extreme muscle and joint pain. These days I can't knit or spin as I hurt too much. That really frustrates me.
And then I have 1 - 3 migraines during the week just to keep me on my toes. Luke went to stay with Grandma's last week so Mike and I could have some quality time together. I had a really, really bad migraine for the whole time he was away. I was not very happy about this!
Not sure what to do about a specialist. the local one is on long term sick leave and I really don't know if its worth chasing to see anyone.. As far as I can tell, no one is particulary interested and there is not much the medics can actually do apart from advise on pacing yourself.
I've started taking Vitamin D as there is some evidence it helps with chronic pain. I did have to laugh when I received the bottle of capsules though - the Vit. D is extracted from wool oil! Even Mike laughed.
I did discuss with Mike the option of me moving out for 6 months to a little flat nearby to give him a break from me and my constant ills but he wasn't having it. I do feel guilty about what its doing to his quality of life.
Saying that, at present there is a really happy little 9 yr old boy sat on the floor in front of me making a massive lego model with the money he received as holiday pay (I am too ill for us to go away so I split what I'd saved for a holiday into thirds and we all got it to spend on whatever we want).
I accidently won a 32" Ashford rigid heddle loom on Ebay so thats was my treat - I put in a low bid and thought I'd never win it but did! (I think it was because it was pick up only). I've only got as far as looking at it. How the hell do I think I'm going to learn to weave when I can't even find enough pain free time to knit and spin?
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